Category: family

We’re Still Here, Still Nothing New to Report

101315DD

Danielle’s numbers (White  blood cell, ANC and hemoglobin) are all slowly starting to climb, which is promising.  They have her on a very heavy antibiotic and anti-fungal medication and she feels very sick and hasn’t eaten in quite some time.  She drank two Slurpee’s yesterday though (she ended up losing them after the second, it was just a bit much) and ate two grapes for Grandma Sandi this weekend, so when I say she isn’t eating – I mean, she isn’t eating much, but sometimes will sample “food” again to decide it just isn’t for her.

She sleeps a lot, she looks very pale and has circles around her eyes, but every once in awhile she perks up like the old days and makes goofy faces, gets out of bed for a few minutes and sits up.  She wears out easily though and finds her way back to bed quite quickly.

Keep on praying for her to get better and come home, we really need to our baby girl home with us.

-Mom

It’s Hard to Report Anything When it’s Not Positive

I was brought up to believe that if you didn’t have anything nice to say, you don’t say anything at all and right now there is nothing new or positive to report. Danielle is in a bad place emotionally right now. She’s been fighting off this cough for weeks, she’s still in isolation, so can’t leave her room. She won’t even get out of bed. She’s lethargic and can’t even form cohesive sentences…why? We DON’T know….maybe its lack of will. Maybe she’s sicker than they think, but they can’t FIND anything!

We can’t take her home because her numbers aren’t high enough and she isn’t getting better (maybe because she’s just DONE and has no will to open her eyes another day to her hospital prison).
She’s lost 15 pounds and won’t eat. They have her on IV fluids now as she is wasting away. She is a terrible gray color and her face is gaunt and I am so pissed off, I can’t even talk about it.
People have been asking why we aren’t posting well that is why. I pray i’ll have something nicer to say soon. Love you.

This is a photo I took of her today, she wouldn’t even make me a goofy face.  It breaks my heart.

dd1008

She Got Sick :(

Danielle has had a cough for the past week and we were hopeful it was just her dust allergies, but it has blown into a full blown cold – which was confirmed by tests (rhinovirus) and has moved into her lungs.

She was taken for a CT Scan today and they found an infection in her right lung and are prepping her for a bronchial test where they go down into her lungs with a camera and take a sample of the fluid while they are there to test for fungus.

This is a major set back and as you can imagine we are quite upset and worried.  I have been fighting pneumonia for the past few weeks and Bill is beyond exhausted, but we are fighting the good fight.

Thanks for keeping us in your thoughts and prayers.