Month: April 2015

No food for Danielle, they are trying to get her in for a bone marrow extraction and need to put her under. They need the marrow to confirm a diagnosis, the “C” word is being tossed around a lot and more specifically we are told it is most likely leukemia, but they need to confirm which type as the treatments differ greatly.

We are told that they are 99% sure it’s acute myeloid leukemia (AML) and without treatment, it would definitely take her life.

We are then told that we will be here in the hospital for the next 30 days (minimum) before the first phase of the battle is over.

This can’t be happing to our little girl!

 

We will kick cancers butt!!

Trina was putting Danielle’s hair in a ponytail and noticed little red spots on her neck, Danielle stated that dad found red spots too a few days before. Then Danielle pointed out a blood blister on the inside of her cheek.  Mom told her to rinse with listerine and to go to school.

After getting Danielle and Devon off to school, Mom and Dad talk about all the little things and decide something is not right. Dad scheduled a same day appointment with DR Thomas.

After talking about the red dots anda brief exam, Dr Thomas orders a blood test. The test quickly comes back with very upsetting results.

• Red Blood cells are close to normal   (ok)
• White Blood cells are VERY high       (bad)
• Platelets are VERY low 27 (normal is between 140 and 440)

We are advised to go to “Doernbechers Childrens Hospital” emergency room and pack an overnight bag. Also, Dr Thomas advised us that it would be a good idea to get a nice family dinner in before we go.  I’m so glad that we did as it’s been full speed since.

We also made a quick stop at the video game store and mom bought Danielle a new Nintendo DS… Danielle was thinking this getting sick business was GOOD business, that will all change soon!

Mom had her pose with her new DS once we reached the hospital.

In the ER we have blood drawn, tests done and lots of long conversations with different people, all very very nice. Morgan & Scott show up and we get assigned a room. We find that her platelet count is now down to 8 (below 100 is classified as emergency)

They will do a platelet infusion tonight in hopes of getting the level up

Thankfully Morgan, Scott and Ashley were here so Mom and Dad could get a good cry in without freaking Danielle out.

After staying up 2am we call it a night and try to get some sleep. And I truly think Danielle thinks we are all over reacting.

Danielle will not get up today, moving really slowly and crying.  She feels I’m push ing her to get ready. After fighting with her most of the morning and trying to get her ready for school, I finally give in and let her stay home. She’s very grounded, but still at home “cleaning the house” and no electronics. Not normal for Danielle to be that blah or emotional in the mornings.

Again I ask her if she feels ok, and does anything not feel right? She says she’s just sad and maybe just didn’t get enough sleep…

I know something isn’t right, but I don’t know what to do.

Danielle is happy and playing with Devon, having fun. Then out of the blue she comes down stairs balling her eyes out wanting a hug, of course she gets all the hugs she wants. When I ask what is wrong I get ” I miss my Nintendo DS” but she lost the DS over a year ago. Why is she so sad about it now, then after she pulls herself together and starts to go back to her room she says she may just cry a little longer (just really feels like crying)?