Yes, I have too, but that’s not to be celebrated! (Thanks Kym!)
The scale dude (I don’t know what else to call him, he shows up daily with the scale, so it fits-right?) weighed her in this morning and she was up! Â Not a lot, but it’s a good trend!
We keep pulling on her hair to see if it gives… Nope! Â She even has stubborn Deisz hair! Â We are trying to keep this topic open to discussion and playful as it is beyond our control so we want her to know she is beautiful beyond her hair! Â AngelHair is making her hair piece right now, it is going to be gorgeous, they informed me that these are not your regular “wigs” that these are custom fitted, fancy this, fancy that, they lost me after telling me the retail cost is $2600! Â We have talked about this subject a lot and she’s thinking in the summer she may just run around without hair or hat and not worry about who looks as she knows they are just curious to see someone who looks different. Â She is so mature beyond her years, this kid never ceases to amaze me!
Big thanks to AngelHair for the sweet and generous Angels who donate to this amazing cause!
Danielle had to have another platelet transfusion this morning, so if any of you have ever considered donating platelets, please do so. Â These incredible donations make it possible for people like Danielle to heal and fight this disease and many more.
BTW know it must be difficult to come up with what to post. You are both doing an awesome job keeping us informed and entertained. Enjoy your lightheartedness, funny comments, cute pictures. And I couldn’t agree more, Danielle is so much more than her hair!!!!